Category Archives: sensory processing disorder

Aha Moment

The best thing about a bad situation is the opportunity to have an “aha moment.” 

When my first pregnancy ended in miscarriage and then turned out to be a molar pregnancy and resulted in cancer, I didn’t trust my body to do anything it was supposed to do.  I became afraid of and paranoid about my health, and you’ve all seen that craziness unfold in my blog on occasion.   In the year following the incident, I forced myself to do new things – things that scared me, like watercolor classes, acting workshops and yoga retreats – as way of regaining the trust I had lost in myself.  The aha moment came when I finally figured out it wasn’t my fault.

As you can probably imagine, I was kind of a Crazy Mama when I gave birth to Dylan two years later.  My father-in-law joked that there weren’t enough specialists in the hospital or the state of Florida to help me.  He was right!  In my defense, I had a tough pregnancy that ended with preeclampsia and an emergency c-section at 37 weeks.  I also had a blood issue that put me at risk for a clot and meant I had to have daily injections (administered by me!) for six weeks postpartum.  Besides that, instead of milk coming from my breasts, there was blood.

At the end of my second day in the hospital, a social worker came to my room to evaluate me because the nurses didn’t think my emotions were appropriate.  They weren’t, and that’s when I had my aha moment.  I had good reason to be a little (okay, a lot) nutty, but the real reason I was acting so crazy was because I was terrified.  I had no idea what I was doing or how to take care of a baby, but I knew one thing: no one in that hospital was going to tell me how to be a mother so I had to take Dylan home and figure it out on my own.  And that’s exactly what I did.  It’s not that I wasn’t afraid a lot of the time, but I listened intently to Dylan and to the voice inside of me, and eventually my maternal instinct emerged loud and strong.

On Monday, I took Dylan to an occupational therapist that specializes in sensory integration.  She did a full physical evaluation and told me exactly what I anticipated she would say: Your son has sensory processing issues.  I knew this at the deepest center of my core, yet hearing the words spill from her mouth made me feel ill.  She validated what I suspected for a long time, but instead of feeling relieved, I felt angry.  Angry at every person who ever brushed off my concerns, told me not to worry, or smiled and said, “In a few years you’ll look back at all of this and laugh.”  I wanted to line these people up and punch them in their faces.  And the anger I felt toward myself was even worse.  Why hadn’t I done something sooner?

I spent most of Monday curled up in a ball on the couch, crying, and watching “Grey’s Anatomy.”  The aha moment came when I was done crying and feeling angry and I remembered the other thing the therapist said:  We can fix this.  Just like when I first took Dylan home from the hospital, I have to listen closely to the voice inside of me that knows what’s best for my child and act on it.  Boldly.  To start, I’m switching pediatricians. Our current doctor is one of the people who disregarded my concerns overand over again.

On Monday afternoon, I did what any Loving, Guilty and Shopaholic Mama would do.  I picked up the boys at school and took them to Toys R Us.  (I had a $5 coupon.)   It had been quite a day for Dylan.  He didn’t understand everything that was happening – in fact, he described his evaluation with the therapist as “fun”– but he’s intuitive enough to know something was up.  For that, he deserved a new toy.  I snapped this picture of the boys holding hands during the short drive from school to the toy store (don’t worry, I took the picture in the parking lot, not while I was driving). 


And just like that, I had another aha moment.  We were going to be okay.  

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Filed under aha moment, Crazy Mama, sensory processing disorder, shopaholism

Memories

I have a friend with an amazing memory. She can remember first and last names of practical strangers or tell mewhat I was wearing at a specific event as far back as 1993.  That’s when we met. We were roommates our freshman year in college and have been the best of friends ever since.  Me?  I know what I ate for breakfast this morning, but don’t ask me to time travel because my long-term memory is bleak. 

The best way to describe it is to imagine a series of photographs pinned to a wall.  Some of the snapshots are of big life events – like graduating high school or giving birth to my boys – and some of them are random but etched in my brain – like when I got caught hiding medicine in the couch when I was a little girl and my mom cried, or when I dressed up like my Dad for Halloween, or when my Nana who suffered from Alzheimer’s told a waitress at a restaurant that my name was Amy (my cousin’s name).

I don’t know why my brain works this way, but it does.  As I get older, periods of time for which I once had movie-like recollections have become individual frames.  High school.  College. Graduate school.  My roaring twenties in New York.  I have a general feeling about these different times and a handful of snapshots that will stay with me forever, but the rest is a wash.   It’s kind of like my appreciation for music.  I can love a song without knowing a single lyric.  

Today, I’m filling out medical forms for Dylan that ask questions like “when did yourchild first sit up?” and “when did your child first babble?”  These kinds of questions are like punches to the gut for mama like me who found it too daunting to keep a baby book where such monumental events would have been recorded.  It never occurred to me that I would need to create a timeline of these developmental accomplishments five years later.  I also forgot (ha!) that my memory would eventually turn it all into mush.

Last weekend, Dylan went to a birthday party at an ice skating rink.  Fun, right?  For Dylan, it wasn’t. First, it was a big, loud place. Second, there was pizza. Forget about it.  Third, it was cold.  He wouldn’t go anywhere near the ice, and even though he should have worn long-sleeves and long pants, he wouldn’t.  He couldn’t.

None of these issues are new, and I’ve written about them before, but something clicked for me when this birthday party became such a struggle.  My memory might be fuzzy, but what I see happening with my child right in front of me is suddenly crystal clear.  Dylan is a stubborn kid, but something is happening in his brain and in his body that is preventing him from accomplishing some basic tasks. 

I’ve always said that Dylan processes the world differently.  It’s part what makes him so gifted and unique.  But, his inability to wear certain clothes and eat certain foods, and interestingly, his fears, anxieties, weak fine motor skills, listening problems and absent-minded professor-like qualities, might all be a result of a sensory processing disorder.

From the Sensory Processing Disorder Foundation:

Sensory processing…is a term that refers to the way the nervous system receivesmessages from the senses and turns them into appropriate motor and behavioralresponses.
SensoryProcessing Disorder (SPD, formerly known as “sensory integration dysfunction”) is a condition that exists when sensory signals don’t get organized into appropriate responses.
Click here to learn more.  
So, here I am filling out these forms, realizing that my memories of just five years ago are already turning into mush. When did your child first sit up?  I have no idea, but I have a photograph of Dylan sitting on the beach in Naples, FL without assistance. He was about six months old and adorable.  It was his first time on a beach, and I remember (yes, I actually remember) as soon as we snapped the picture he started eating fistfuls of sand.    

When did your child first babble?  I’m going to have to call my friend with the amazing memory.  She stayed with us when Dylan was a baby.  If he babbled during her visit, she’ll remember. 

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Filed under food issues, sensory processing disorder, therapy