Category Archives: sensory processing disorder

Five Maxes and Five Coins

Part 1: Five Maxes

Dylan has a lot of Maxes in his life.  Before Saturday night, there were four – two friends at school, one cousin in California, and one soul mate from Where The Wild Things Are.  After Saturday night, there were five.

Our good friends, including Dylan’s bestest friend, Sophia, who he plans to marry someday (and live with in a tree house in Texas), have a dog named Max.  He’s a sweet dog, but he happens to weigh about 900 90 pounds, which makes him more of a polar bear than a dog in Dylan’s eyes.  To put it mildly, Dylan is petrified of him.  He hasn’t stepped foot in their house in almost a year, except for one time when Max was sent on a sleepover and another time when Max was kept locked in the bedroom, which, if I recall, didn’t end well for the carpet.

On Saturday night, I convinced Dylan to go to their house.  I promised I would protect him from Max.  Dylan agreed to go if – and only if – he could play in Sophia’s room with the door closed.  Deal.  (Riley, by the way, has no major issue with the gentle giant.  Each time we go to their house, he simply reminds me not to let Max eat him.  Sure thing.)

The evening included a lot of holding and playing in Sophia’s room with the door closed, but by dinnertime, we sensed some bravery in Dylan when he agreed to sit as the table as long as Max was far away.  Progress!  A little while after that, it happened.  Dylan decided he was done being afraid of Max.  Just like that.  No big deal.  Perhaps it had something to do with the fact that Max gives high fives on command?  In any case, he got off his chair and played with abandon the rest of night declaring Max the dog his new friend.  Do you remember when Dylan suddenly bounced?  I don’t know how or why, but another wall came crashing down, and let me tell you, it was priceless.

In case you’re wondering, he didn’t eat anything for dinner except a bagel and cream cheese.  Disappointing?  Sure.  But in the context of a night where he faced another fear and prevailed, it was hard to be too upset.

Part 2: Five Coins

I write incessantly about Dylan’s sensory issues, and it’s occurred to me that maybe you’ve wondered if Riley has any challenges, too.  Maybe not, but I’m telling you about it anyway because it’s my blog.  🙂  He has one sensory issue.  It’s tactile and it rears its ugly head with clothes.  It’s approximately 97.9% behavioral and 2.1% sensory, and it’s 100% a bitch.

He makes me cut tags out of all of his clothes, he won’t wear a shirt with a collar or buttons, and he protests long sleeves (but he wore them – and pants – in San Francisco when he was freezing his little butt off so I’m kinda on to him).

Pants must be soft.  Hoods and/or pockets that he can feel on the inside are strictly prohibited.  “Take your cargo pants and relaxed fit denim and shove them up your ass,” says Riley to anyone who will listen.

He’s one of those cool cats with a fashion uniform of mesh athletic shorts and a tagless graphic t-shirt.  This is fine for most three-year-old social situations, except for cold weather, bar mitzvahs and weddings.  He hasn’t been invited to a bar mitzvah or a wedding yet, but I worry about it (of course).  We’re not a fancy family.  I mean, I love to get dressed up, but it’s rare that – as a group – we go anywhere that Crocs are inappropriate.  Still, any chance I get, I try to dress Riley in something other than his bleeping mesh athletic shorts.

On Saturday night – the same night Dylan triumphed over his canine nemesis – I convinced begged and bribed Riley to wear a pair of Quicksilver shorts that have been collecting dust in his closet for about a year.  They’re not formal by any means, but they don’t scream physical education.  They still fit (phew), and…wait for it…they’re polyester with pockets.  I was screwed.

Surprisingly, he agreed to wear them on two conditions: he got to wear his batman t-shirt and I had to give him money.  Deal.

“I’ll give you a dollar if you wear these shorts all night.”

“No, I want money.”

“Riley, a dollar is money.”

“No, I don’t want a dollar.  I want money.”

“But a dollar is money.”

“No, it’s not.  I want money.”

This went on for a quite a while before I remembered I was conversing with a three-year-old.

“You want coins?”

“Yes!”

I gave him three pennies, a nickel, and a dime, and he wore the shorts all night long.

There you have it.  Five Maxes, five coins, and a reminder to never give up hope, this too shall pass, it’s always darkest before the dawn, after a hurricane comes a rainbow, and a cold glass of Pino Grigio goes a long way toward helping maintain sanity.  Either that or it takes the sting out of knowing that it’s long gone.

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Filed under clothing, sensory processing disorder, Uncategorized

Pancake Party

If you give a pig (Dylan) a pancake,

He’s going to scream and cry.

When he screams and cries,

He’ll probably end up in a timeout.

While he’s in a timeout,

Mama will pour herself a glass of wine.

When he’s done with his timeout,

He’ll have to taste a pancake,

Which will probably make him scream and cry.

He’ll end up in another time out,

Which will give Mama a chance to pour another glass of wine.

You get the picture.  Alongside blogger, personal driver, laundry folder, undefeated Connect Four champion (they never see the diagonal win coming), human bedtime “blankie,” and Play-Doh hater, you can add food therapist to my list of accolades and qualifications.

I’ve been told many times that food behaviors are the hardest to change, and I happen to have a child who’s dysfunctional eating behaviors are so ingrained in him – and from such a young age – that he doesn’t even know why he’s doing them.  The sensory issues that sparked it all are buried under layers upon layers of fear, avoidance, control, and defense.

We’ve been immersed in intensive behavioral therapy since August to get at the root of Dylan’s food issues.  Unfortunately, it hasn’t been very fruitful (pun intended).  Without getting too descriptive about the experience (I don’t like to gossip, except, well, nevermind…), the company we worked with proved to be unimpressive.  We had a lovely and well-intentioned case manager and tutor assigned to our case, but neither of them had the experience or capability to tackle Dylan’s food and eating behaviors within the context of sensory processing disorder.

It took me a little while to figure it out (it always does), but eventually I realized they weren’t addressing Dylan’s strengths and weaknesses or taking into account his specific needs.  Instead, they imposed on him a methodology that only exacerbated his sensory sensitivities.  I saw with my own eyes how their approach was shutting Dylan down instead of opening him up.

I tried to express my concerns, make changes to the program, and enlighten them about the ins and outs of sensory processing disorder, but then it dawned on me that I shouldn’t have to do that.  They are supposed to be experts.  They are supposed to have answers.  Or so I thought.  Did I give them enough time, you’re probably wondering?  I don’t know.  I really don’t.  But my gut told me to end it, and if I’ve learned anything on this journey, it’s to trust my instinct.  Earlier this week, I made the difficult decision to end services with this particular therapy program, and as you can imagine, I feel a lot of different emotions.

Sadness.  I thought this was the answer we’d been searching for.  I really did.

Failure/Guilt (of course).  Why can’t I figure this out?  Why can’t I get it right?  Why can’t I help my son?

Relief.  Three to four nights per week of tidying up, prepping food, and hosting someone in my house was exhausting.  The past few nights alone – with just our family – have been a reprieve.  The anxious anticipation of each night’s menu, whether or not he would eat, and how he would react was an emotional rollercoaster.  Wanna know a secret?  The nights when he took bites of food were worse than the nights when he didn’t.  I wanted to be happy when he tasted, for instance, a new macaroni and cheese, but as soon as he swallowed a miniscule bite he would declare, “I hate this,” or, “Now I never have to eat it again.”   He wasn’t eating.  He was surviving the session.

Panic.  F—k.  Now what?

Inspiration. Even though, in the end, this therapy program wasn’t the right choice for Dylan, the time we’ve spent at the dinner table has given me a renewed sense of confidence.  Instead of shying away from this daunting job (his worst mealtime behaviors happen around me), I choose to own it.  I may be off the “math parenting” hook, but I’m not out of the woods.  Not by a long shot.  There is still the pesky problem of the boy who hates new food.

Tonight, I planned a pancake taste test:  sweet potato, blueberry, and chocolate chip.

Riley dove right in.

He liked them all, but the blueberry pancake (from Yummy In My Tummy) was his favorite.

After Dylan finished his Oscar worthy meltdown, he sat the table and took one teeny-tiny bite of the sweet potato pancake, which he didn’t even swallow.  Ditto for the blueberry one.  He successfully swallowed a crumb from the chocolate chip pancake (with a Gatorade chaser), and declared, not surprisingly, “I don’t like it.”

And that was it.  The pancake party was over.  But the journey is far from complete.

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Filed under food, food issues, sensory processing disorder