Category Archives: sensory processing disorder

Trying

A few weeks ago, I took Riley to the doctor because he snores like a troll, always has a stuffy nose, speaks as nasal as anyone I’ve ever met, and is a horrible morning person.  He’s also failed a basic hearing test in his left ear twice in less than six months.  After a thorough examination, the doctor agreed that his adenoids might be the culprit.  We were given a nasal spray, a prescription for blood work to check for allergies, and a referral for a pediatric ENT.  For most people, this would have been good news.  A step in the right direction!  Solutions!  Not me.  I felt the burden of something being wrong rather than the relief of questions being answered.

I promised myself that when Dylan finally wore pants or a long sleeved shirt I would throw a party.  Or hire a sky writer!  Instead of celebrating the incredible victory, I immediately set my sights on the next challenges – food and bounce houses.  I couldn’t enjoy the moment because I had so many more things to worry about.

On Monday, day six of food therapy, when we transitioned from green light (easy) to yellow light (hard) foods, I found it easy to be pessimistic about Dylan gobbling up a grilled cheese sandwich, a food that I haven’t been able to get him to eat at home in more than a year.  There was no victory lap for me – only a cynical feeling that he succumbed because the alternative, a piece of chicken, was far too difficult a proposition.

On day seven, I was in my element.  After two hours of crying, hiding, and failed manipulations, Dylan failed to eat a single bite of his dinner choices.  Our therapist left the house with a big, fat zero in her “percentage of bites taken” column.  Oh, how I reveled in the anger, frustration, and guilt!  The crying and the second-guessing came so easy!

Yesterday, in a moment of clarity (or mad desperation), Dylan declared that he would eat celery during his dinner session.  To say that I was surprised would be an understatement.  It was an odd (and green and fibrous) choice for child who’s never eaten a vegetable in his life that wasn’t hidden in macaroni and cheese.  The only point of reference I could think of, besides a few occasions where we’d served celery with some kind of dip at home, was the “Wonder Pets,” and if I had them to thank for Dylan’s inspiration then it wouldn’t be the first time I’d expressed my gratitude to Linny, Tuck, and Ming-Ming.  Suspicion crept over me, but we stopped at the grocery store and bought a head of celery anyway.

Are you wondering what happened next?  Are you sitting down?  He ate the celery.  It was really hard for him to do, but he swallowed his fear and, by golly, he swallowed some celery.  Speechless.  Shocked.  Flabbergasted.  These are pretty good word to describe how I felt.  I praised him and went through all of the motions a proud parent would do after witnessing such bravery and achievement, but I didn’t feel the way I thought I would feel the moment ate “new food.”  Instead of feeling happy and relieved, I felt confused and duped.  I wanted so badly to believe that celery was the hammer that would finally knock down the wall, but I didn’t.  Of course not!  My strength lies in wallowing in anxiety and doubt rather than basking in the wonder, albeit odd, of Dylan eating celery.  Celery, for Pete’s sake!  One of my rules, which were published at Voices of Sensory Processing Disorder a few weeks ago, is to savor the victories, especially the small ones.  Believe me, I’m trying.

Do you ever find it easier to be sad than happy, pessimistic than optimistic, or worried than relieved?

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Filed under anxiety, food issues, sensory processing disorder

Why I Do This

I write about all facets of motherhood on this blog, but it’s true (alert the media!) that I have a five-year-old child with sensory processing disorder.  He also has green eyes, a big smile, and a wicked sense of humor, he’s beyond bright, he gives great hugs, he loves to spell, he loves math (which just about kills me on a daily basis), he’s a great swimmer, and he’s compassionate way beyond his years.  In my spare time, I’m also the mother of a smart, stubborn, and squishy three-year-old boy who has the bluest eyes you’ve ever seen and a nasty addiction to strawberry Kefir.  Where my older son has sensory issues, my three-year-old has peeing-on-the-floor-next-to-the-toilet issues.  (They all have something.)  Mostly, I’m the mother of two young kids who challenge me physically, psychologically, and emotionally on a daily basis.  Just like you.

I write this blog for a lot of reasons.  Selfishly, it’s for me.  It feels so bleeping good to get this stuff off my chest.  A little bit less selfishly, it’s for my boys.  I hope one day they have the clarity to see me not just as Mommy, but also as Jennifer or Jen or Jenny.  (Oh, and not to hate me.)  I also write it for you.  I try hard to give my children (and my husband, occasionally) the respect they need to go about their business with some sense of privacy, but I also know that what I’ve gone through – and what I will go through – isn’t unique to me.  It’s merely a bi-product of deciding to grow a human being inside your belly (or securing one from another lovely location) and committing to affording to send them to preschool.  It’s in the sharing of the experience – no matter how serious, sad, or just plain funny it is – that a sense of community is born and the precious gift of not being alone is realized.

I’ve just begun guest blogging on a new site called Voices of Sensory Processing Disorder.  You can read my first guest post, “Making and Breaking the Rules,”  here.  Without a doubt, I feel grateful on a daily basis that my kids have ten fingers and ten toes, no heart defects, no tumors, no intellectual disabilities, or fill in the blank.  But I do have a child with challenges that affect not only his daily functioning, but also the rest of our family’s.  It’s my honor to share my obsession with owls, my love of shopping, my persistent paranoia about my health, my dislike of cleaning pee on the floor next to the toilet, and the problems I’m determined to see through with my kids, my husband, and myself.

Here are some recent posts from this blog and some oldie-but-goodies you may have missed (tisk tisk).

  • As of this morning, I have 24 more pencils to sharpen.  Read “Hard” here.
  • How do you find comfort?  Me, I love falling asleep on the couch.  Read “Couch (or Blame) (or Hands)” here.
  • Mama math is excellent brain exercise.  Read “Word Problems VIII (The Back to School Edition)” here.
  • Are there little people sleeping in your bed…uninvited?  Read “Transform(er)ation” here.
  • Been to a public bathroom with your kids lately and wish you could have your memory erased like in “Eternal Sunshine of the Spotless Mind”?  Read “Public Bathroom Manifesto” here.
  • Considering an uber hip postnuptial agreement?  Read “Testimony” here.

As always, thanks for reading…and sharing!

Questions, comments, concerns, recipe ideas, restaurant suggestions, book deals, or ideas on how to get my kids to brush their teeth twice a day?  Contact me at therunawaymama(at)gmail(dot)com.

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Filed under health, owls, sensory processing disorder, shopping