Category Archives: going to the doctor

Four Words (Approximately) To Live By

Do you remember the episode of “Mad About You” (how badly did I just age myself with that 1990s television reference?) when Paul and Jamie make Mabel cry it out for the first time in her crib? They sit on the floor outside her bedroom door tortured by her sobs.

I remember those difficult nights with both of my boys, and I can still feel in my bones the heartache I endured and strength it took to make them cry it out at various times during their babyhood, Terrible Twos, Threenager Threes, and What The F**k Fours.

Five, though, was my sweet spot. At least it was with Dylan. With him, five was the year that occupational therapy peeled back layers upon layers of anxiety, fear, and discomfort to reveal a charismatic, funny, and bright boy with whom I enjoyed (almost) every moment. Five was the year he blossomed. It was the year we knew everything would be okay.

Five with Riley has been the opposite. Five has unraveled him. It wants to swallow him whole. My sweet, silly boy who once skipped (literally) through life now moves (figuratively) with a slow, aching limp. He dislikes school. He’s withdrawn from his friends. He’s rigid. He’s anxious. He’s fragile. If he were a grown man, I’d send him to a therapist and suggest a pill or two. But he’s five, so it’s complicated.

I would sell my soul in exchange for his happiness, but since I don’t anyone who does that sort of thing, I have to put my faith in a more conventional strategy. Given my journey down a similar path with Dylan a few years back, I’m prepared, ready and eager (but heartbroken nonetheless) to get to the root of it all.

I’ve spent the last several weeks having Riley examined, evaluated, studied, observed, poked, and prodded by an arsenal of doctors and therapists to figure out what the heck is going on. Slowly, we’re checking some boxes and (thankfully) un-checking others, finding answers, and getting to work, but in the meantime, there’s a hella lot of malaise to endure.

At the pediatric eye specialist’s office, where we spent nearly three hours ruling out convergence insufficiency (a condition that has plagued his brother and a box I was relieved to un-check), the doctor asked Riley what he liked to watch on television. She wanted to distract him with her iPad while she administered eye drops.

“Do you like Thomas?” she asked.

As Dylan would say, What the?!  That ship sailed train left the station a long time ago.  (Thank God.)

I waited for Riley to say, “I watch Stampy Minecraft videos on YouTube.”

I was close.

“I watch Stampy Terraria videos on YouTube,” he said.

“Who’s Stampy?” the doctor asked.

I tried to explain that Stampylongnose is a super annoying British bloke who makes videos of himself talking about and playing video games and whose high-pitched voice will haunt me in my grave, but the sound of my own voice was drowned out by the epiphany that Riley said Terraria instead of Minecraft. It suddenly occurred to me that Minecraft was no longer the “it game” of his boyhood and the bane of my parental existence.  Just as his interest in “Thomas the Train” in time faded away, his obsession with Minecraft, I realized, had begun to run its course, too (except for the new mods Mike just downloaded) (don’t ask me what a mod is because I don’t know).

In that moment, my mind flooded with memories of the some of the most daunting phases of Riley’s early childhood that had come and gone with no warning, instructions, or guidance.

Like when he breastfed every one and a half hours for weeks months.

Like when he woke up every morning at approximately 4:15:37am with a scream for two three years.

Like when he began every sentence with “Mommy, Mommy, Mommy, Mommy, Mommy, Mommy…

Like when buckling him in his car seat was like stuffing an elephant in a shoebox.

Like when I had to sing You Are My Sunshine and Moon Moon Moon three (hundred) times at bedtime.

Like when it took no less than forty-five minutes to get from the parking lot into the front doors of preschool due to sticks, rocks, lizards, butterflies, and birds.

Like when he had to poop in every public bathroom he passed.

Like when he wanted to use the Rainbow Loom all by himself.  Often.

Like when the only place he would sleep was in my bed.

Like when he was stage scared. (He still is.)

Like now when he chews his shirts to shreds.

Like now when he tells me that school is hard. That homework is hard. That school is no fun.

Like now when he won’t get out of the car at morning carpool.

Like now when he prefers to be alone in his room more than anywhere else, including birthday parties with bounce houses and cake.

Like now when he has meltdowns over every. little. thing.

During the phase when Riley habitually woke up before dawn, I eventually habitually awoke a few minutes ahead of him with a jolt of anxiety and dread. It’s the same anguish Paul and Jamie felt when they sat helpless on the floor outside of Mabel’s bedroom door, and it’s the agony I feel right now as five tries to take Riley and the rest of us down. But I won’t let it because I’m holding on for dear life to the four words that have gotten me through eight years so far on this wild ride:

This too shall pass.

That, and: Expect the unexpected. (Three words, I know.)

And: Trust your instinct. (Three words again. Sorry.)

And: You are your child’s best advocate. (Six words. Crap.)

And: If something feels wrong, it probably is. (Seven words. I can’t stop.)

Last one: The only expert on your child is you. (Eight words. Okay, done.)

RileyFive

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Filed under aha moment, anxiety, boys, expect the unexpected, going to the doctor, motherhood, school, sensory processing disorder

It’s My Birthday

A while back, Riley and I had a priceless conversation in the car.  It was so hilarious that he occasionally likes to repeat it like it’s a one-act play.  It goes like this:

Riley: Can I help you drive?

Me: No, silly, you have to be 16 to drive.  Are you 16?

Riley: Yes.

Me: Well, if you’re 16, then I’m 50.

Riley: Then you will die.

I’ll never forget this exchange.  That is, unless Alzheimer’s gets me, in which case it’s a good thing I wrote it down.  Today’s my birthday.  I’m 38 years old, which isn’t really old at all.  Unless you ask Riley.  Not only does he think I’m going to die in twelve years, but sometimes he calls me Old Lady instead of Mommy for fun.

To celebrate my 38th year, I’m getting a pap smear.  You heard me right.  I’ve chosen to receive a gynecological exam on my birthday.  (Do you remember when I asked my gastro for a colonoscopy?  If you know me at all, you know I’m capable of unthinkable things.)

If my third decade has taught me anything, it’s that I need to take care of myself. I’m the epitome of good health on the surface.  Case in point, my favorite food is kale.  And if my love of dark leafy fibrous greens isn’t proof enough, I’m training to run a 10K race at the end of October.  (Actually, that might be evidence not of good health, but rather that I’ve lost my mind.)

Still, I’ve had a lot of medical drama.  My personal favorite – besides the numbness in my left ankle, which resulted in me being tasered, er, I mean, having a nerve conduction study (age 36) and the preeclampsia (and subsequent emergency c-section) that made me as swollen as the Pillsbury Doughboy (age 31) – has to be the pre-cancerous polyp they found during my first colonoscopy (age 34).  That was awesome!

The overarching theme of my 30s has definitely been motherhood, and boy did it start with a bang!  I spent my 30th birthday recovering from a molar pregnancy and drowning in depression about whether or not motherhood was even in the cards.  (By the way, I should totally get a 30th birthday do-over, because, as Dylan would say, that was the worst day ever.)  Thankfully, motherhood was in the cards.  Eight glorious, sleep-deprived, and messy years later, my story is much different.  I’m the proud owner of two happy and healthy little boys, both of whom I blame for most if not all of my health problems (at least the mental ones).

Let’s face it, motherhood is perilous.  It’s allowed me to witness and be a part of breathtaking miracles, but it’s also put me in a chemo chair, on the operating table, and on the couch.  My pregnancies and births alone – with miscarriage, choriocarcinoma (i.e. cancer from the molar pregnancy), preeclampsia, sciatica, low platelet counts, blood thinners, and c-sections – were a monumental feat.  (And Dylan wants me to have another one!) Then came the postpartum ventral hernia (back to the OR!), atopic contact dermatitis (any other Mamas out there allergic to baby wipes?), IBS, severe anxiety, more low platelet counts, and suspicious thyroid nodules.

But I’m here, folks!  I’m still standing!  (In my kitchen with a sink full of dirty dishes!)  I’ve accessed the healthcare system in ways I never could’ve imagined, and somehow I’ve come out none the worse for wear each time (it’s a lot easier to put things into perspective eight years later).  All that said, I know the agony of sitting opposite a doctor and receiving bad news, of experiencing loss, of prepping for a surgery for which you don’t know the outcome, and of waiting anxiously for biopsy results.

These days, I have a dream team of doctors who treat my ailments – big and small and utterly ridiculous.  Hematologist?  Check.  Optometrist?  Check.  Gastroenterologist?  Check.  Neurologist?  Check!  But I’m proud of my Rolodex of MDs, because occasionally something happens that truly deserves attention (hello, thyroid!).  In other words, shit can get real, people.  Real fast.

As I watch my parents and in-laws deal with the stress of aging, my dog struggle from worsening degenerative disc disease (now Harry has a neurologist, too), and my kids grow big and strong before my squinting eyes (where are my reading glasses?!), I’m compelled to take the very best care of myself so I can be around to wipe my boys’ butts forever.  (That came out creepier than I intended.)  So I can write help them with their college essays, and join the office of (helicopter) parent relations on their college campuses.  (Okay, that was creepy, too.)

So, I’m getting a pap smear on my birthday, and I can’t wait!  (That might be a slight overstatement.)  Sure, I could’ve scheduled it another day, but I did it today – on my actual birthday – as a reminder and an oath not to take my health for granted no matter how tired, busy, lazy, or scared I feel.  Because, let’s face it, my cervix and ovaries (and breasts and heart and brain and thyroid) might not give a crap that I fancy kale.

All of this “which disease will take me down” talk is kind of depressing.  If you’re wondering why I’m not marking the beginning of the end of my 30s by drinking wine, eating cake, and online shopping in my pajamas, worry not.  The sponsor of the 10k I’m training for is a local bar, and all runners get free beer and wine at the finish line.  Chardonnay for breakfast!  Wahoo!  Also, after this morning’s lady parts check-up, I plan to perhaps possibly probably do a little bit of birthday window shopping before fetching the kids at school.  Maybe.  (Definitely.)   And about the cake?  There. Will. Be. Cake.  Cake will be consumed.

All I want for my birthday (besides expensive denim, a waterproof iPhone case, and a headboard) is for you to take care of yourself, too.  If you do something marvelous for your health, like get a skin screening at the dermatologist (I’m overdue!), schedule a mammogram, or go for a long walk, tell me about it in the comments here or on my Facebook page.  It will totally make my day.

p.s. If you insist on getting me a birthday present, it would really rock my world if you’d “Like” my Facebook page and share it with all of your fabulous Facebook friends.  That would be super cool.

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Filed under anxiety, birthday, colonoscopy, conversations to remember, eyeglasses, giving birth, going to the doctor, Harry, health, molar pregnancy, pregnancy, thyroid